My spouse and I have gone to a couple appointments with first his urologist and then a care manager, followed by the radiation doctor, spread out over a month. And we read a lot: online and even a book. We even consulted all the family members ( in-laws) who have had it and learned of their treatments and reflections.
Our first appointment was an hour long where we were carefully explained his 12 biopsies and how they are categorized and what that means in terms of treatment. We have digested terms such as Gleason score. Prostate Cancer is one of the most common types of cancer, and no, you don't die from it. It is slow growing and very common in men especially over the age of 65. Overwhelming! But very well and patiently explained. And we get to decide.
His is low on a 3 scale system and because of his age (65) he is a good candidate for either the surgery or radiation.. Another whole discussion of side effects, and issues surrounding each treatment. We are very fortunate to have a doctor who has done a relatively new radiation treatment called cyberknife. A) It is only 5 treatments of an hour for each session in a 2 weeks versus 28 in 6 weeks. It is robotic. B) There are no recovery issues or catheters as from the surgery. C) The doctor has done this for over 10 years, making him very experienced.
So going forward with Cyberknife. It will take another 2 weeks to a month to get that rolling.
Then the bombshell of our cost after Medicare. OMGoodness! Yes, there are payment plans.( Update, supposedly only a few thousand dollars. )
But he can still work, just not lift the little guys. And all the lovely side effects: ED and incontinence.
FORWARD! ( Yes, also Wisconsin's motto.) But we are lucky and positive.
I hope all will go well. You always hear that Medicare is supposed to pay a lot but you wonder. I guess it goes by total income as well - my sister had a brain tumor a couple years ago and she barely paid anything for her surgery and follow scans - but i have heard others pay quite a bit - I guess you don't know until it happens - luckily we and she did too have a supplement insurance but I always feel like we pay more for our medical bills then she does
ReplyDeleteSorry to hear about the diagnosis, but please you have such a good outlook, support from friends and family and what sounds like an awesome medical team. Sorry to hear $$ is a bit of problem. Don't necessarily accept what you're first told about what they will and won't pay for. Sometimes you have to get a bit vocal. My best to you and your hubby.
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Sending lots of love and positive cyber vibes xx
ReplyDeleteHaving knowledge helps so much. So glad you have a medical team that is taking the time to explain things and answer questions. Prayers are being said!
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